Action for A-T

If you would like to make a donation please visit our page on the Bmycharity website.

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Action for A-T has been established to raise money that can be put directly into medical research with the aim of trying to find a cure or some medical advancement that will enable children who suffer with the condition Ataxia-Telangiectasia (A-T) to live a longer and healthier life.

A-T is a rare, progressive and neurodegenerative disease that starts
in early childhood. The condition attacks many different parts of the body causing severe multisystem disability and premature death.

There is no cure for A-T and no way to slow down the progression of this brutal disease.

The frequency of babies born with A-T is estimated to be between 1 in 40,000 and 1 in 100,000 births.

The A-T disease is "carried" silently by many people in the general population who have one mutated ATM gene.
Carriers do not suffer from the disease. It is only where two such A-T carriers each pass their mutated gene to a child then that child will suffer from the A-T disease.

Because the disease is so rare, major drug companies are not looking for a cure. It is down to grass roots fundraising to try and make a difference to the lives of A-T Children.

We will be working together alongside the A-T Society:

www.atsociety.org.uk