This year will be Evie’s best ever
IF THERE were a prize for the cutest six-year-old Evie Read would surely bag it. A very proud owner of new sparkly trainers, a birthday present from her mum Emily, 36, she doesn’t hesitate when asked what she most likes doing.
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Danny Pike interview with Jonny Wilkinson
Thank you to Jonny Wilkinson who recently did a radio interview on BBC Radio Surrey and Sussex with Danny Pike. Listen here to hear what he had to say about Action for A-T and why he supports the charity’.
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Thank you to Alison Brattle
Thank you to Alison Brattle who took part in the Hever Castle triathlon raising money for Action for A-T. Here is an article from her local newspaper
Channel 5 news piece presented by Emma Crosby
Daily Mail - 29th Feb 2012
We can't bear to tell her': How cruel terminal condition will slowly rob five-year-old Evie of the ability to speak and trap her in a paralysed body - but leave her mind untouched.
Daily Telegraph- 5th March 2012
Evie Read has been diagnosed with a rare disorder that will leave her body paralysed but her mind will be intact.
Daily Mail - 26th March 2012
Evie thinks she just has 'wobbly legs'. The truth will break your heart: How a faulty gene is slowly robbing this little girl of her future
